Want to have a say on how you think your NHS Health Data should be shared?
Parsonage Surgery are taking part in the below survey & would appreciate your support by completing an online survey.
Researchers from the CLIMB Project team (Clinical Informatics for Mind and Brain Health) based at the University of Cambridge would like to know your views on health data sharing. You can find more information on the CLIMB Project team and their aims at www.climbproject.org.uk
Health data is information collected in the course of health care provided by the NHS (or HSC in Northern Ireland). It is used to provide care, and sometimes also for research to improve care for others. However, there are ways of controlling how health data is used.
The team are looking for men and women aged 16 or over (or under 16 with parental permission), who currently live in the UK, to visit www.climbproject.org.uk website and take part in an anonymous online survey about health data sharing. The team have found that the survey takes on average between 15 and 20 minutes to complete but you can take a break in the middle if you prefer, and all questions have a prefer not to say option. There is the optional opportunity to leave an email address at the end should you wish, to receive the results of the survey when it has finished. The survey will close at the end of September 2020.
Further details, including an online version of the information leaflet is available on the front page of the teams website www.climbproject.org.uk where one ‘click’ will take you to the actual survey. The research team are hoping to gather over 20,000 responses from across the UK.
It is important for the research that you confirm where you heard about the survey, if you are happy to do so. When asked ‘we would like to know where you heard about this survey..’ please tick the ‘GP via SOCIAL MEDIA box and when prompted click PARSONAGE SURGERY.
Should you have any further questions, please contact Linda Jones (firstname.lastname@example.org) who is co-ordinating the survey, and would be pleased to help.
Thank you very much for taking the time to read this invite.
COVID-19 Research - Help the fight against COVID-19
Join a COVID-19 clinical trial - The PRINCIPLE Trial
The PRINCIPLE trial aims to find treatments that reduce hospital Admission and improve symptoms for people with COVID-19. You could be eligible to join if & self refer through the trial website if:
You have had these symptoms for fewer than 15 days:
- a continuous new or worsening cough
- You are aged 50 to 64 with a pre-existing illness:
High blood pressure and/ or heart disease
Diabetes not treated with insulin
Asthma or lung disease
Weakened immune system due to serious illness or medication (e.g. chemotherapy).
Stroke or neurological problems
You are aged 65 and above
Find out more via www.principletrial.org
Click here to download a poster with this information (PDF, 551KB)
Click here to download this information in an easy read format (PDF, 813KB)
Be Part Of Research
This site gives patients the opportunity to take part in trials that they may be interested in.
We are a research active practice & participate in research studies. If you are contacted in relation to a study & require further information, please contact the surgery reception team.
Barrett’s oESophagus Trial 3 (BEST3): Cluster randomised controlled trial comparing the CytospongeTM-TFF3 test with usual care to facilitate the diagnosis of oesophageal pre-cancer in primary care.
Study Title: STILTS2 - A study examining the common and rare variants associated with thinness - patients aged 18 to 65
Study design: Case-controlled study
Study Aim and Objectives:
Genetic factors play a major role in determining the susceptibility to severe Obesity and several genes have been identified in the last 10 years by the team in Cambridge.
At the other end of the weight spectrum, there are people who are persistently thin despite living in an Obesity promoting environment. Thinness (BMI<18kg/m2) is as stable and heritable as severe obesity. However, to date no genetic studies have been conducted in thin people.
The aim of this study (STILTS2) is to recruit a substantial cohort of thin people for genetic studies.
Recruitment in practice: 1-2 months in practice
Study Title: Learning about the lives of adults on the autism spectrum and their relatives
Study design: Observational Questionnaire/Survey
Study Aim and Objectives: There is a lack of evidence about effective interventions and no research knowledge regarding the impact of the relationship between ageing and autism.
This study is the first of its kind in the UK for adults with autism spectrum conditions, as part of a programme of research into ASD across the life course. Experts in ageing and life course, experienced autism researchers, and people on the autism spectrum and relatives will undertake this project. This study will involve engagement with people on the autism spectrum, their parents, siblings and partners, and meeting and discussing with them to understand much more about how living on the spectrum affects people’s daily lives as they age.
Recruitment in practice: Anticipated recruitment of 30 patients - recruitment up to June 2017.
Study Title: iQuit in Practice - Improving quit rates among smokers in primary care
Study design: 2 parallel group randomised controlled
Study Aim and Objectives: To assess the effectiveness and cost-effectiveness of the iQuit in Practice intervention compared with usual care alone in a definitive pragmatic trial with 6-month follow-up and biochemical verification of abstinence.
Recruitment in practice: 44 smokers - The study will run from 01/04/2016 to 01/03/2019
Previous studies our patients have taken part in are:
All Heart (Allopurinol and cardiovascular outcomes in patients with ischaemic heart disease) - Primary Objective is to determine whether the addition of allopurinol 600mg daily to usual therapy improves cardiovascular outcomes.
Time Study (Treatment in Morning versus Evening Study) - A study to determine if antihypertensive therapy taken in the evening has improved cardiovascular outcomes compared with more conventional morning dosing.
Momms Study - Polypharmacy in chronic diseases: Reduction of Inappropriate Medication and Adverse drug events in elderly populations by electronic Decision Support / MoMMs trial (Management of Multiple Medications)
Ecass Study - Evaluation of a Computer Aid for assessing Stomach Symptoms
VBI Study - The objective of this trial is to obtain estimates of the efficacy and cost of a very brief pedometer-based intervention to promote physical activity in adults aged 40-74 years attending an NHS Health Check.